THIS SITE IS INTENDED FOR U.S. AUDIENCES ONLY.

SEE WHAT IT’S LIKE TO LIVE WITH PULMONARY ARTERIAL HYPERTENSION (PAH)

Learn more about PAH

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INTRODUCTION
Living with Pulmonary Arterial Hypertension

Being diagnosed with pulmonary arterial hypertension (PAH) may be hard to accept. It can cause a variety of feelings, from shock and disbelief, to anger, fear, or sadness. It may also be a relief to leave uncertainty behind, to put a name to this condition, and learn how it can be managed.

 

INTRODUCTION - ENTER THE WORLD OF PAHUMAN.
ABOUT THIS WEBSITE

About this Website

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UNDERSTANDING PAH

UNDERSTANDING PAH

One of the first steps in living with PAH is building a partnership with your healthcare team. Having a strong connection can help you to better manage your PAH and take a more active role in your condition.

To learn how one person builds a strong relationship with her doctor and how it helps contribute to her overall outlook, click on the "Building a PAH Partnership" video.

BUILDING A PAH PARTNERSHIP VIDEO

BUILDING A PAH PARTNERSHIP

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UNDERSTANDING PAH

UNDERSTANDING PAH

Our bodies excel at doing what we ask of them. When we run for a bus, or reach for our phones, our bodies instantly translate the oxygen we breathe and our energy reserves into coordinated movement. We don’t have to give it a second thought. It can be different for people with PAH.

It may be hard to believe, but for people living with PAH simple everyday tasks can feel as tough as climbing Mount Everest.

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What Is Pulmonary Arterial Hypertension?

PAH is high blood pressure in the arteries that carry blood from the heart to the lungs. It's a serious condition that can make it difficult for blood to flow through the arteries of the lungs.

What Is Pulmonary Arterial Hypertension (PAH)?
THE ROLE OF THE HEART

THE ROLE OF THE HEART

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WHAT HAPPENS TO THE PULMONARY ARTERIES IN PAH?

WHAT HAPPENS TO THE PULMONARY ARTERIES IN PAH?

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HOW DOES PAH AFFECT THE HEART?

HOW DOES PAH AFFECT THE HEART?

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SIGNS AND SYMPTOMS OF PAH

SYMPTOMS OF PAH

Symptoms of PAH are often noticed when performing or carrying out physical activities, such as climbing up stairs, running, walking uphill, or carrying grocery bags.

As PAH progresses, these symptoms may be experienced more often and may start to impact one’s ability to undertake everyday activities.

COMMON SYMPTOMS OF PAH

COMMON SYMPTOMS OF PAH

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WHO GETS PAH AND WHAT CAUSES IT?

 WHO GETS PAH AND WHAT CAUSES IT?
HOW COMMON IS PAH?

HOW COMMON IS PAH?

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What causes PAH?

What causes PAH?

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PAH AND BODY CHEMISTRY

PAH AND BODY CHEMISTRY

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TYPES OF PAH

TYPES OF PAH

There are many types of PAH. Often, it is idiopathic, which means the cause is not known. Rarely, it runs in families.

In some cases, PAH may be associated with other conditions, such as congenital heart disease or connective tissue disease. Some of the causes are known and some have yet to be identified. A doctor may be able to help a person with PAH understand what type he or she has.

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BURDEN OF PAH

For some patients, PAH remains at the forefront of their lives, whether they are running errands, meeting friends for coffee, or planning a vacation.

The U.S. PAH Patient and Caregiver Survey, supported by Actelion, revealed that the impact of PAH on those living with the condition extends far beyond the established physical symptoms of the disease.

BURDEN OF PAH
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IMPACT OF PAH ON THE PATIENT

IMPACT OF PAH
ON THE PATIENT

PAH affects many aspects of daily life, and it can take some time to adjust to living with the condition. It is important to know that many patients share similar experiences as they adapt to life with PAH.

EMOTIONAL WELL-BEING

EMOTIONAL WELL-BEING

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FRIENDS AND FAMILY

FRIENDS AND FAMILY

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LEISURE ACTIVITIES

LEISURE ACTIVITIES

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IMPACT OF PAH
ON THE CAREGIVER

PAH affects many aspects of daily life and it can take some time to adjust to living with the condition. It is important to know that many caregivers share similar experiences as they adapt to caring for someone with PAH, as uncovered by the U.S. survey.

IMPACT OF PAH ON THE CAREGIVER
EMOTIONAL WELL-BEING

EMOTIONAL WELL-BEING

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FRIENDS AND FAMILY

FRIENDS AND FAMILY

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HOME, WORK, AND INCOME

HOME, WORK, AND INCOME

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LEISURE ACTIVITIES

LEISURE ACTIVITIES

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PAH - PRACTICAL GUIDANCE

Helpful PAH Tips

If you are a patient with PAH, this section has been developed to provide you with additional information on what to expect when living with PAH and tips to help you manage your feelings, manage your well-being, and move forward with a life beyond PAH.

Living with and managing PAH symptoms can have a significant emotional impact. It is important to know that you are not alone. These feelings are very common among people with PAH. Your family, friends, and other important people in your life, together with your healthcare team and support groups, are there for you when you need them.

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HOW TO EXPLAIN PAH TO YOUR FAMILY AND FRIENDS

HOW TO EXPLAIN PAH TO YOUR FAMILY AND FRIENDS
SHARE YOUR THOUGHTS AND FEELINGS

SHARE YOUR THOUGHTS AND FEELINGS

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TALK ABOUT YOUR CONDITION

TALK ABOUT YOUR CONDITION

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TALKING TO PEOPLE WHO KNOW PAH

TALKING TO PEOPLE WHO KNOW PAH

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TAKING CARE OF YOUR HEALTH

TAKING CARE OF YOUR HEALTH

SET GOALS AND MAKE ACTIVE CHOICES

SET GOALS AND MAKE ACTIVE CHOICES

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EATING HEALTHY

EATING HEALTHY

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EXERCISE AND PAH

EXERCISE AND PAH

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ADDITIONAL AREAS
TO THINK ABOUT

ADDITIONAL AREAS TO THINK ABOUT
JOINING A SUPPORT GROUP

JOINING A SUPPORT GROUP

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MANAGING FATIGUE

MANAGING FATIGUE

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STARTING A FAMILY

STARTING A FAMILY

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WORKING

WORKING

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EDUCATION

EDUCATION

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SOCIAL SERVICES

SOCIAL SERVICES

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TRAVELING

TRAVELING

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LIVING WITH PAH

PAH RESOURCES

To learn more about PAH, please download the educational brochures or visit the websites, below.

PAH AND BODY CHEMISTRY

PAH AND BODY CHEMISTRY

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LIVING WITH PAH

LIVING WITH PAH

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MANAGING DIET AND PAH

MANAGING DIET AND PAH

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SCLERODERMA AND THE RISK OF PAH

SCLERODERMA AND THE RISK OF PAH

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WEBSITES

WEBSITES

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